Syndromes Without A Name (SWAN) supports families of children with undiagnosed genetic conditions.
How it can help
SWAN UK supports families of children with undiagnosed conditions, helping them connect, share and find support.
Their services include:
- providing support and information to families
- organising events and activities to connect families and share experiences
- raising awareness and advocating for the needs of families and children
- sharing resources and information to help navigate the challenges of undiagnosed conditions
- supporting research and collaboration to improve understanding and support
Age
0 to 25 years
Eligibility
Open to all
How to access
Contact via phone, email or website